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Welcome to NF Central Plains

Make your month of May be a strong one for NF!

Make a donation to your local NF Chapter in honor or memory of a loved one with NF. Post or share something about Neurofibromatosis on your Facebook page. GreatSteps4NF.jpgDon't forget to register to attend the 7th Annual Great Steps 4NF walk, Saturday, May 30, 2015, Macken Park, 800 Clark Ferguson Drive, North Kansas City, MO 64116.

Visit the NF Network to register for the Great Steps 4NF walk or learn more ways you can help make a difference for NF in May!


B-I-N-G-O Spells Success!

A hamburger joint hardly seems the venue for raising awareness and funds for NF, but that is exactly what happened at Kansas City’s Hamburger Mary’s on Wednesday, March 25, 2015.NF, Inc. Central Plains hosted Charity Bingo, and was the recipient of funds raised from the sale of bingo cards and raffle tickets.The lively crowd consisted of both supporters of NF as well as customers who had never heard of NF before that evening.“I had so much fun,” one patron commented, “that next time you host I’m going to bring all my friends!”The best part of the event was that our organization raised nearly $1000 for NF camp scholarships and other patient outreach projects/social events.


Adult Night Out

Looking for an adult night out on the town? Join NF, Inc. Central Plains for an evening of fun at Hamburger Mary's Charity Bingo!


Hamburger Mary's of Kansas City
3700 Broadway Blvd.
Kansas City, MO 64111

Wednesday, March 25, 2015
7:30 p.m.

It's not your grandmother's BINGO as it can get a bit risqué , but it's all in good fun and for a worthy cause! This is an adults-only event.

While the official festivities won't begin until 7:30 p.m., come early to grab some food, drink, and good seats. We'll be raising money for NF, Inc. Central Plains and the Neurofibromatosis community it serves.
Bingo cards will be 10 for just $10 and a chance to win some fun prizes. No reservations are necessary. Just show up and feel free to bring a friend, or two, or three!

It promises to be good fun for a good cause. Be sure to share and pass this on to all your friends, that fun spells B-I-N-G-O!  Hope to see you all there!


Save the Date!!



2015 KC walk has been set!



Saturday, May 30, 2015

10:00 am at Macken Park

800 Clark Ferguson Drive
North Kansas City, MO 64116

To register and for more details including donor forms and corporate sponsorship materials click the register now button.



Early bird treat, register for our Family Fall Fling by Wednesday, October 15, 2014 and receive a FREE NF tote to the 1st ten registrants (1 per group). Hope to see you there!

It's FALL-- Join us for NF Family Fun!
Spend a  day with other NF individuals and their families at the:

Deanna Rose  Farmstead
Sunday, October 26, 2014
1:30 p.m. to 4:00 p.m.
13800 Switzer  Road
Overland Park, KS 66221

for more information on the Deanna  Rose Farmstead, CLICK HERE

Join  in as our NF community enjoys a day of fellowship, fun, and loads of  activities: farm animals, petting zoo, pony rides, playgrounds, wagon rides, a  hay slide and much more! In the spirit of the Halloween season, we  invite everyone, young and old, to dress in costume. We will be judging the  costumes in a contest to be held at 2:00 p.m.  sharp!

General admission is FREE for each person with NF, who reserves a  place, plus one guest. The price for admission for all others is $2.00, ages 2  and under are free.**
**NOTE: some activities  do require additional fees which may be purchased in COMBO or single from the  Farmstead and are the sole responsibility of the attendee.

Light  refreshments will be provided. 

Reservation  required! Please respond by Sunday, October 19, 2014 to be sure  your spot is reserved.

Email us at nfcentralplains@gmail.com now to send us your RSVP, please give your name, phone number, the individual you know with NF, if you are registering with that individual, how many are in your party, how many under the age of 2 




It's been a great summer! 2 Great Steps 4NF walks in the KS/MO area, over $30,000+ raised, a lot of fun, friendship, and awareness, PRICELESS!!

Thanks to everyone that came out to the KCMO and Wichita walks and helped bring together awareness and funds for NF.



Let's make some  NOISE!
Raise Awareness this  May for NF!


How can you make a difference during  May,
Neurofibromatosis Awareness Month?


Get tips by browsing the "NF Awareness Toolkit" via the Neurofibromatosis Network  website.  Whether you are a person living with NF, a spouse, a partner, a child,  a parent, a grandchild, a friend or a loved one, we hope you will find an idea  that works for you!


For  the month of May, let's make some noise and let people know NF is important to  you by changing your Facebook profile picture to support NF!  There are  several options available, use one, or use them all throughout the  month!

Watch for "Did  You Know" NF Facts on, NF Network's Facebook, Twitter and the  NF Network website throughout May to share with  everyone you know!


How can you donate or fundraise in your  community and workplace to benefit NF?  Visit NF Network website to find fun tips during May on creating  awareness while raising funds and using your creativity, challenging family,  friends, and co-workers to rise to the NF cause!

Doodle4NF begins May  8th thru May 18th!


Don't miss this fun annual fundraiser for  the NF Network!  Autographed Celebrity doodles are collected  year-round and offered for sale during a 10-day auction.


Celebrity doodles are  online now for viewing and will be auctioned on eBay starting May 8th.  Some of  the celebrities participating this year are; Gillian Anderson, Ellen DeGeneres,  Steve Carell, Seth Green, Stan Lee, Barbara Eden, Micky Dolenz, Jersey Boys Las  Vegas and many more!

Visit the Doodle4NF website to see all the 2014  doodles!

Have you registered yet? Yes, it's that time again for our 6th Annual Great  Steps Walk 4 NF in Kansas City, MO!!! Click here for more info and to register  http://www.nfnetwork.org/nf-happenings/great-steps/missouri-kansas-city

Walk Details:
6th Annual Great Steps Walk 4 NF
Macken Park,  North Kansas City, MO...
Saturday, June 7, 2014 at 10:00 am (check-in 9:00  am)

Some highlights of the walk include free breakfast and lunch AND over 40  raffle baskets and silent auction items (not to mention all the fun and people  you meet at this walk)!!! Don't miss out! The earlier you register, the faster  you can get started on your fundraising efforts!!!!

Teams are already  forming, here are some awesome team event fundraisers that everyone can  enjoy!!!

1. Ladies Day Bingo- Sponsored by team Combing Out NF
2. Horse  Shoe Tournament- Sponsored by team Bezay's WalkNRollers
3.  Ladies Night Out Wii Bowling Tournament-Sponsored by team Bezay's  WalkNRollers
4.  Orange Leaf Frozen Yogurt Fundraiser - Sponsored by team Bezay's WalkNRollers  Thursday, May 8 (5-pm - 10 PM) at 501 3rd Pl, Manhattan, KS 66502. Don't forget  to mention the NF Fundraiser!!

Don't miss out on any/all of these!! Get the fundraising momentum going and  have a blast! Start your team today and get started raising funds for  NF!

Remember to email us nfcentralplains@gmail.com if your  team has a fundraiser you'd like promoted on our website or FaceBook  page.







Last Chance, register today!


Click here to register now!


Register Now!

iNFormation Day with the Experts




Saturday, March 1, 2014
*9:00 a.m.-1:00 p.m.
$10/per person-includes continental breakfast and light lunch
Adults ONLY--childcare will NOT be provided
*KU School of Nursing,
3901 Rainbow Blvd. #G020,
Kansas City, KS 66103


Be iNFormed!






Don't Miss this!


Click here to register now!





Join us for a FUN-RAISER at Sweet Tomatoes!

raise money for individuals and families

affected by NF (Neurofibromatosis) 

Take your family to dinner, and support our worthwhile cause at the same time! Sweet Tomatoes will donate 20% of sales generated by any guest who brings in the attached flier. Enjoy a great meal and help a great organization!

January 23, 2014
5:00 p.m. to 8:00 p.m.


Sweet Tomatoes- 8505 College Blvd., Overland Park, KS 66210
  1309 Meadow Lake Pkwy., Kansas City, MO 64114

Please share the fliers with all of your friends, colleagues and family members, and be sure to print one before you go!
For event fliers click below.

Click here for event fliers


Happy Holidays

Warm Holiday Wishes and Prosperous New Year To You and Your Family!

NF, Inc. Central Plains would like to wish you and yours a Happy Holiday season and a New Year filled with good health and cheer! Thank you for giving us the opportunity to help serve you as part of the NF Network community. We look forward to many more things to come in 2014!!

In this season of giving if you would like to help make a difference and support Neurofibromatosis your gift is greatly appreciated. Make a Difference Now




Be sure to check out our totes for the holidays, for gifts or for yourself!

Just in for the holidays! Small (14"x14"x3") canvas totes in 2 colorful designs find them in our shop:Tote1.jpgTote2.jpg




The Continuing Resolution (CR) that is currently funding the government expires on January 15th.  Congress is working NOW to finalize Fiscal Year 2014 funding levels for programs included in the Department of Defense Appropriations bill, including the Peer-Reviewed Neurofibromatosis Research Program (NFRP).  


The NFRP is one of the Department of Defense’s Congressionally Directed Medical Research Programs (CDMRP) and is the primary source of federal funding for NF research.  This highly successful program has shown tangible results with broad implications for the general population.  Sustained funding is critical to continue this promising research and build on the successes of this program.


The House included $15 million for NF research in their Fiscal Year 2014 Defense Appropriations bill, and we need your help to ensure that this level of funding is maintained in the final FY2014 Defense bill that is sent to President Obama for his signature.


Please ask the members of your Congressional delegation to support NF research.



Neurofibromatosis, Inc. Central Plains is a nonprofit organization founded in 1989 to provide information and support to people049.jpg with neurofibromatosis (NF), their families and anyone interested in the disorder. We remain dedicated to NF families and the professionals who provide services for them. We serve those who live in Kansas, Western Missouri, Oklahoma, Nebraska, and Colorado.

There are many ways you can get involved!

  • Join our e-mail list! We'll keep you updated about events that are going on in your area and all the latest news regarding neurofibromatosis (NF).
  • Like us on Facebook! We put our events on facebook and other information about what's going on in the community of NF.
  • Check out our blog. We post videos, stories about people who have NF, ways to get involved, and the latest research.
  • Take a look at all the upcoming events! There are events all over the midwest for raising money and awareness about NF.  
  • Want to help out but can't be involved in another way? Make a donation to NF Central Plains!.
  • Shop our store for chapter NF support items.


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