NF Central plains

DEDICATED TO AWARENESS, EDUCATION, AND SUPPORT FOR THOSE AFFECTED BY NEUROFIBROMATOSIS

​Drum Roll, Please!


NF Central Plains hosted a program for both adults and children, together and separately, in March.  The evening in Kansas City started off with a spaghetti dinner for all attendees.  Afterwards, the adults moved to their own space for a discussion with Dr. William Rosenberg, neurosurgeon and founder of the Center for the Relief of Pain.  At the same time, children of all ages enjoyed the musical entertainment provided by Johnny and Adam’s Rhythm and Music.  The program concluded with the adults joining in the jam session.

 Dr. Rosenberg described the non-traditional options available for pain associated with nerve damage and tumors, from topical compounds to surgical implants.  The participants gained valuable information and had the opportunity to get their numerous questions answered. The younger attendees tried all sorts of percussion instruments and banged on the colorful drums to Johnny’s lively guitar-playing.  

The program was made possible through the generosity of the friends and family members of Keith Keirsey, an inspirational member of the local NF community who passed away last year.  It was the first of a series of educational programs that will take place in his memory. 

​​We are NF Strong!!

​Join us for the 2019 #NFStrong 5K! These inspiring events that take place in communities nationwide create strong bonds that build a supportive NF community.  The goal of these strong communities is to rally together and become one great voice in finding effective treatments and an eventual cure for NF.  The walks are a great way to involve family and friends and meet others who are affected by NF, all while raising awareness of this disorder and to create funding for NF research.

                                                                                                       


​Save the Date!  The 2019 NF Strong Walk is on Saturday, June 1st, 2019 at Macken Park - 800 Clark Ferguson Drive, Kansas City, Missouri. 


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Announcing Financial Assistance for Camp New Friends
 
Camp New Friends, part of the Brainy Camp network, has a history of changing the lives of children with NF.  The week-long program is staffed by neurologists, nurses, social workers and counselors, all trained in dealing with issues associated with NF.  Camp New Friends provides a safe environment for children ages 7 through 17.  The 2019 event will be held from August 3rd - August 9th.  For more information, go to the Brainy Camps website by clicking HERE.
 
NF, Inc. Central Plains is offering financial assistance to help subsidize the cost of the camp and/or travel expenses.  Contact us at nfcentralplains@gmail.com to learn more.  Act now, as financial scholarship are limited!  All inquiries will be kept confidential.

DON'T FORGET TO REGISTER FOR THE 2019 #NFSTRONG WALK ON JUNE 1ST!!!  CLICK HERE NOW TO CREATE OR JOIN A TEAM!

Stay tuned for more events in 2019!  Do you have an idea for an event?  We'll help YOU make a difference!  


CONTACT US!